Advocating for Your Child's Mental Health: A Guide for Parents
Advocating for your child, especially when they have a mental health concern, is crucial to ensuring they receive the support and services they need. As a parent, you have a vital role in navigating the complexities of the educational and healthcare systems to secure the best possible outcomes for your child. This post provides valuable tips and answers common questions to help you effectively advocate for your child.
How Do I Talk with My Child About Their Mental Health?
Communicate Openly: Establishing open lines of communication with your child is essential. Regular, positive conversations can help you understand their experiences and concerns.
Start with general questions: Use openers like, "What do you like best about school?" to make your child feel comfortable.
Ask specific follow-up questions: Inquire about challenges with questions like, "What is the most challenging part of your day?" or "How do you feel about your classmates and teachers?"
Be an active listener: Show empathy and understanding. Respond with, "I see that must be hard for you," to validate their feelings.
Model the behavior you want to see: when kids see their parents express themselves without judgment or fear, it helps them learn to do the same
Understand Behavioral Differences: Recognize that your child may behave differently at home and school. It's important to get a complete picture of their experiences by talking to their teachers and other school staff.
Talk to teachers regularly: Schedule meetings to discuss your child's strengths and weaknesses.
Ask targeted questions: Inquire about your child's ability to follow instructions, stay on task, and interact with peers. For example, "Does my child have difficulties with organization or staying focused?"
Maximize Parent-Teacher Conferences: Be prepared for parent-teacher conferences by listing your questions and concerns beforehand.
Prepare a list of questions: Write down specific concerns to discuss at the beginning of the conference.
Focus on solutions: Ask about strategies to support your child, potential goals, and any need for special education services.
Follow up: After the conference, review what was discussed and set up a plan of action with clear steps.
Regular Check-ins: Make it a habit to check in with your child regularly about their mental health and school experiences.
Set aside dedicated time each week: This could be during dinner or a quiet time before bed to talk about their feelings and any challenges they are facing.
Observe changes: Pay close attention to any significant changes in behavior, sleeping patterns, appetite, or social interactions. These can be early signs of mental health issues that need addressing.
When Should I Seek Professional Help and How Do I Make Sure My Child Gets The Right Treatment?
Don't Delay Support: If you have concerns about your child's performance or behavior, seek help immediately rather than waiting for scheduled meetings.
Request a comprehensive evaluation: Ask the school to assess your child's cognitive, academic, social, and emotional functioning as soon as concerns arise.
Understand legal rights: Know that schools are required by federal law to support children with learning or psychiatric disorders.
Understand Treatment Standards: Ensure that the treatment your child receives is evidence-based and delivered by experienced professionals.
Ask key questions: Inquire about the clinician's experience, the goals of the treatment, how its effectiveness will be measured, and how they will involve you in treatment. For example, "What is the evidence that this treatment is effective for children with similar symptoms?"
Monitor progress: Regularly check in with the clinician about your child's progress and any adjustments needed. Schedule frequent visits when starting a new treatment or medication.
Medication Monitoring: If your child is prescribed medication, ensure it is closely monitored.
Discuss medication specifics: Ask about the medication's purpose, dosage, potential side effects, and how effectiveness will be measured.
Regular check-ins: Schedule frequent appointments, especially during dosage adjustments, to ensure the medication is working as intended.
What Should I Know About Medication and Therapy for My Child?
For All Treatments:
Experience: "How much experience do you have treating children with similar symptoms?"
Goals: "What are the goals of this treatment, and how will we measure its effectiveness?"
Evidence: "What is the evidence that this treatment is effective for my child's condition?"
Duration: "How long should we expect our child to be in treatment?"
Role of Parents: "What is our role in the treatment?"
Adverse Events: "What are the possible side effects, and when might they appear?"
For Medication:
Medication Details: "What is the generic name of this medication, and how does it work?"
Alternatives: "What are the alternative medications, and why did you choose this one?"
Effectiveness: "If it's effective, what changes should we expect to see in our child?"
Dosage: "How do you determine the best dosage for this medication?"
Side Effects: "What are the potential side effects?"
Monitoring: "How will you measure the effectiveness of the medication, and how will you monitor my child while they are on it?"
Duration: "How long should my child continue taking this medication, and how will it be discontinued if needed?"
For Behavioral Therapy:
Therapy Details: "What is the name of the therapy, and what is it designed to treat?"
Evidence: "What is the evidence for its effectiveness?"
Therapist's Experience: "How many patients have you treated with this specific therapy, and what special training have you had?"
Parental Involvement: "What is the parent's role in this therapy, and do you involve other family members?"
Progress Measurement: "How will we measure progress, and when can we expect to see changes in behavior?"
Regular Monitoring: Both medication and behavioral therapy require regular monitoring to ensure they are effective and to make necessary adjustments.
Frequent Check-ins: Schedule regular appointments to review your child's progress and make any needed changes to the treatment plan.
Open Communication: Maintain open communication with your child's clinician, sharing observations and concerns to ensure the best care.
What Are Section 504 and IEPs, and How Can They Help My Child?
Understanding school accommodations and plans like Section 504 and Individual Education Programs (IEPs) is essential for advocating for your child's educational needs.
Section 504 Accommodations:
Purpose: Section 504 plans provide reasonable academic accommodations to help children with learning disabilities participate in the classroom
Eligibility: To qualify, a child must have a disability that substantially limits one or more major life activities, such as speaking, listening, concentrating, reading, or writing.
Accommodations: These can include special seating, quiet places for testing, extra breaks, use of a computer, different textbooks, or alternative testing formats.
Planning Meeting: Attend the 504 Planning Meeting to discuss and establish the appropriate accommodations for your child. Periodic reviews will ensure these accommodations continue to meet your child's needs.
Individual Education Program (IEP):
Purpose: An IEP provides specialized instruction and services to meet the unique needs of a child with a disability, ensuring they receive a free and appropriate education.
Eligibility: Children qualify under the Individuals with Disabilities Education Act (IDEA) if they have one of the specific legal disabilities, such as autism, hearing or visual impairments, developmental delays, emotional disturbances, intellectual disabilities, orthopedic impairments, or specific learning disabilities.
IEP Meeting: You will meet with a team of educators and specialists to develop a personalized education plan for your child. This includes setting measurable goals and determining the necessary services and accommodations.
Review and Adjust: The IEP must be reviewed at least once a year, though you can request more frequent reviews to ensure it remains effective. You can bring an advocate or specialist to these meetings for additional support.
Steps to Take:
Request Evaluations in Writing: Formally request an evaluation to determine if your child qualifies for a Section 504 plan or an IEP.
Gather Documentation: Collect all relevant documents, such as report cards, behavior assessments, and testing data, to support your request.
Attend Meetings: Actively participate in all planning and review meetings to advocate for the accommodations and services your child needs.
Monitor Progress: Regularly check your child's progress and communicate with teachers and specialists to make necessary adjustments.
Utilize Resources
Most states have a Parent Training and Information Center that can guide the laws and processes for obtaining accommodations and services for your child.
By understanding and utilizing Section 504 plans and IEPs, you can ensure your child receives the necessary support to thrive academically and emotionally.
